Hi John,

Thank you for the reply! So, as to Raynaud's, I tested negative on the ANA test. I haven't yet done the erythrocyte sedimentation rate. Will ask my PCP about it. As mentioned, I've never seen anyone with Raynaud's describe their symptoms as anything similar to mine other than the changing color with temperature.

As for acrocyanosis, I've definitely considered that, especially with my feet- and that's why I'm having the ultrasound done. The only thing that I haven't done on the "diagnosis" section is a skin biopsy, which I've requested through my PCP already.

As for seeking help at a teaching hospital.... most of my specialists have been OHSU-affiliated, so I *think* that's already happening. That being said, I'd be open to anyone/anything at this point- the more contact, the better. The only problem may be- which specialty does this even fall under? My PCP is putting in referrals for dermatology, rheumatology, and immunology, but those appointments will likely be several months away.

Thank you very much for those links - I'm a researcher by profession, but am trying not to overdo it and worsen any anxiety. Both those pages were clear, concise, and quite useful. Thank you!

Matt