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DiscussionIs there any successful story?
MAC & Bronchiectasis | Last Active: Feb 6 8:02pm | Replies (78)Comment receiving replies
Replies to "Arikayce seems so effective for many people. How is it that it is not given first?..."
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Scoop, it seems to me that Arikayce is not a first-line treatment because there are other effective, less expensive treatments with fewer and less severe side effects, i.e., the Big 3. The potential side effects of Arikayce are not to be taken lightly. You don't use your big guns unless you absolutely need them!
If you were to pay out of pocket for Arikayce it would set you back $15,000 a month. I found this out when my secondary insurance changed and they were denying me the Arikayce I had been on for 7 months. Fortunately my doctor got it straightened out by writing a pre-authorization but it was a hassle. So, bottom line is, I doubt that insurance wants to fork out that kind of money if the cheap stuff works. Always comes down to money, doesn't it?
Yes, I wonder that too and wouldn't be surprised by anything in this dog eat dog money maker madness world of greed mentality. "It doesn't seem to be working."
"Who cares! give it to them anyway! We made a whole bunch and we need to use it up!." haha.... Anyway... and the fear aspect. The big 3... those monstrous amounts of antibiotic which had to be wreaking havoc in my body but doing no good? Holy moleys I didn't like that and wished I could just not take them during the third year along with Arikayce..... but the fear factor. I was afraid not to because I wanted the mac gone so badly. Arikayce did the trick that's for sure but not without a cost. It is rough. I couldn't speak for that whole year I was taking it. I lost my voice!! I've always considered myself a more quiet person... not needing to say much. Ha! You don't know how much you want to say something ANYTHING .. until you can't. You might just want to add a little comment... a little come back in a conversation...but ya can't! hahaha! Geez Louise. And it gave me earaches. The pulmonologist finally told me to stop taking it a month or so earlier than a full year because my hearing was at risk. Anyway. .. blab blab blab.. Little ol quiet me is blabbing ... bye.