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DiscussionI am afraid of trying Tymlos and other drugs due to side effects
Osteoporosis & Bone Health | Last Active: 20 hours ago | Replies (176)Comment receiving replies
Replies to "@gravity3 My apologies to the forum for sharing ‘negative thoughts’, that was not my intent. I..."
I probably did make myself clear. I don't think anyone should suppress their feelings positive or "negative". I was simply referring to how any of us could get stuck trying to put all of the information together in order to make a decision about meds. I have found it exhausting in ever possible way. So many of us are struggling to find the path that we hope is best.
@ Hankins, You do not need to apologize! I personally am terrified of medications because they all are unnatural to the way our bodies should function if normal!
I have never had any success with drugs. For example, the drug (pantaprozole) that was supposed to treat LPR (a more serious form of GERD), and in fact taking proton pump inhibitors for a while is what I believe sent my Dexa scores into a downward cycle. Drugs for nerve pain like Gabapentin, did nothing for my nerve pain- only made me feel like a zombie. Same with any antidepressant drugs and I've tried nearly a dozen of them. Was prescribed Xanax years ago for anxiety, only to find out that a psychologist recently told me they predispose you to Alzheimer's disease if taken for a long period, which my mother had! Would never have started had I known that.
You assumed your doctor was taking the precautions so that you would not end up with high hypercalcemia, yet here you are. I would be upset, too. And I would never take Prolix, either.
Doctors are great at prescribing medicine. It is up to us to do the research to make sure that we are not going to run into problems down the road from taking them. I picked up my first prescription for Tymlos yesterday. Didn't have the heart to take it, after reading what Susan wrote about needing to go on something else afterwards. I will never, ever take an anti-resorptive drug because I have had dental problems all my life. That leaves only Forteo, and so that leaves me at risk to develop possible bone cancer since I've had radiation. Not a wonderful situation to be in.
So your fears about medication are not unfounded and you are not alone. Check out the reviews about these medications on Drugs. com. They are not good! If we cannot come on this site and voice our concerns , then we have no voice for them, which is sad.
In the end we have to make our own decisions, and this group on this site is very supportive. I would not even consider trying Tymlos if it were not for the positive comments and support on this site. Good luck with your decision!
You definitely are allowed to express your fears and concerns here. That is what a support group is for. However, it is wise to not let fear get out of hand.