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Traveling with PMR

Polymyalgia Rheumatica (PMR) | Last Active: Feb 1 4:45am | Replies (41)

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@dbloom

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Thank you. Before diagnosing myself with PMR, I had started with shoulder and some neck pain that I was waking up with. I thought perhaps I was sleeping in a bad position or I needed some new pillows. Soon after the pain/stiffness progressed to my hips and thighs at which point I started to investigate on Dr. Google. I found I had typical symptoms of PMR and proceded to the PCP who would not give me steroids. She wanted the diagnosis from a Rheumatoligist and it was very difficult to get a Rheumy appointment. The pain & stifness would subside as the day progressed, however mornings became impossibile for me to even get out of bed. I luckily had a Medrol pack (5 day steroid pack) on hand for a bad knee which I needed on hand for an upcoming trip to Patagonia (that had to be cancelled due to PMR). I took my Methyprednisolone (Medrol pack) out of desperation (12mg as the dose I saw on the net) and it worked like a charm. I luckily got to see a Rheumtologist who confirmed my diagnosis and I am on Methyprednisolone now, curently at 12mg (lowered from the original dose of 16 that the Rheumy wanted me on). For me, it is definitely a morning problem and that is only because I am stagnant the entire night. Activity keeps the inflammation down. Although I am doing well on the Methylpred, I have very very slight PMR symptoms each morning when getting out of bed. The slight PMR symptoms disappear within an hour or two of my morning routine.