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Same here, almost the same time line as you. I had severe reaction to Arikayce. I am not tolerating rifampin very well, gives me chest pain and interferes with my BP. Just on two meds daily now. But i am exhausted! My doctors gaslight me and say i shouldnt feel this way. My xrays/ct scans say i am not better but i am not worse. LOL I have a desk job and am ready to quit. I have to do my housework in stages. Cant sleep because of the chest pain. I am asymptomatic the MAI was found by accident. I am absolutely wore out and my family thinks i am just being lazy.
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May I tell your family you are so not lazy!! I was the ever ready bunny till I got MAC and BE. They can look MAC up online. It even talks about the exhaustion and how family members need to understand it is difficult to do so many things like housework and meal prep. I was the holiday house for everything. I still provide the house, but everyone brings a dish now and cleans up for me.
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I could not tolerate rifampin either I experienced throwing up violently and awful chills. I’m exhausted too and my family doesn’t understand it. I’m on 2 of the big 3 along with clofazamine. An experimental drug. I nebulize every day with albuterol and 7% saline to try and keep the airways open. Good luck to you I completely get it.