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Is there any successful story?

MAC & Bronchiectasis | Last Active: Feb 6 8:02pm | Replies (78)

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@hbarbh

Hi bayarea. You're right about people being treated successfully then not checking back in to the MAC groups. Happened to me. I was so happy to be done with 3 solid years of treatment that I was like "I'm outta here and never want to come back!" I think I started the Mac horror show in 2016. The big 3 didn't seem to work. I was jamming those monsters down my throat for two solid years and still.... mac mac mac. So Arikayce was added to the mix. Another year went by where I was taking the big 3 and arikayce with it. I probably didn't even need those 3 dumb meds. It was the arikayce that did the trick. Anyway by the time I endured 3 years of treatment --- and when I finally got 6 months of negative cultures back I was sick to death of the whole routine so I decided to never go back to a doctor again. I'm done I don't care to even know if there's mac in there. Doesn't seem like it to me. I live alone on a little homestead in the country and I work like a 35 year old man. (I'm 71) When I'm chopping wood or cutting and stacking a field of hay with hand tools I think to myself . "I'm cured." My mind says I'm cured and I believe it.

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Replies to "Hi bayarea. You're right about people being treated successfully then not checking back in to the..."

I’m with you!

Arikayce seems so effective for many people. How is it that it is not given first? Maybe it's a business reason!

Fantastic...."chopping wood or cutting and stacking a field of hay" and at 71 years young.
I'm curious, do you wear a mask when you do things like that and also in public places ????

We all go about it all differently and attitude and mind set also plays a big role in this trial and error of taking care of ourselves with BE/MAC. So, I understand your mantra/affirmation of "I'm cured." You go "girl."

I have not started the antibiotics. Have MAC but no cavity showing since the original 2022 C Scan and NJH 2023 work up that showed mild BE/MAI. So for now, holding off on antibiotics, BECAUSE, I feel well and can do all I need to do for myself at a 'young 82 and 3 1/2 months of life.
Happy stacking!
Barbara