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No I am not very helpful to this discussion. I have been questioned by the experts on this site why I reached the decision i did. I also have regrets on the decision that I made. I just didnt ask questions from this group until years later. I went to the Dr in dec 2019 with an uncomfortable urge to urinate. Constantly. A physical exam showed a slightly enlarged prostate. Urologist recommended a biopsy as a first step. My PSA was 1.0. which was normal for me. Biopsy revealed 1 out of 12 samples with cancer. At that point, I panicked. I could not live with knowing I have cancer in me. Dr suggested we do active surveillance. I requested removal. I just wanted it out. No other testing . nothing. I had robotic assisted surgery. Feb 2020. No cancer since. Post op revealed cancer with clean margins gleason 3+3. I suffer from incontinence and ED. My point to you was I had normal PSA . Although I did have cancer
Replies to "No I am not very helpful to this discussion. I have been questioned by the experts..."
Did you have robotic removal?
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@tuckerp
I tried to post a reply but I clicked something and lost it. So if you get duplication that is why.
I too had a normal PSA but with diagnosis had prostate cancer. Having (per my R/Os, urologist, PCP) a normal PSA does not mean you don't have cancer. Having an abnormal PSA does not me you have cancer. That is why testing is so important if something seems to be a problem to see what that problem is.
On MCC we are not prostate cancer experts. We are not medical experts. Some have had extensive experience and some with a lot of information from studies etc. and want to share with others.
Nothing can replace the expertise of a medical professional especially like those at major medical institutions like Mayo, Cleveland Clinic, John Hopkins, and many others.
The purpose of MCC prostate cancer forum is to share our experiences with prostate cancer, diagnosis, treatments, side affects, etc. , and be inspirations to others. We learn a lot on this journey and can help those by sharing our journeys.
Your biopsies showed cancer and you discussed with your medical experts the treatments and you chose what you wanted for you. That is a pesonal decision on what you personally wanted to do.
It appears your post op revealed prostate cancer was confined to prostate which is great news. The side affects of removal of prostate are for some what you posted.
What you decide is your personal decisions. You did discuss with your medical professionals and chose what you wanted personally. What is important to you and what you wan to do after your learned you had prostate cancer may not be the same for another and is why it is a personal decision.
Good luck and enjoy your life!