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@windyshores

@lhankins so sorry! Remind me: how long have you been on Tymlos?

Doctors often seem to feel obliged to follow the studies on meds which are usually for certain doses. My endocrinologist is chair of endo at a major urban teaching hospital and was delighted that I got on Tymlos at all. He is now using the titration method for other patients (or maybe had had already, before I did!). He said 60mcg is therapeutic but of course encouraged higher. I actually told him after the fact. I believe that since we have a right to decline meds, we have a right to reduce the dose, especially when our intention is to take as much as we can tolerate. So I reduced dose, got on Tymlos that way, and told my doctor that the method worked to get me onto an acceptable dose.

I wish you knew if the calcium was high on 60mcg. Do you take calcium supplements? Did you stop for a period of time and was the testing done without any Tymlos shots? Calcium metabolism is complicated and there is a lot that is hard to understand.

I found out recently that we can have DEXA's more often if we are being treated. Can you see where you are at now? I did Evenity followed by Reclast after Tymlos. It is not well-studied but my doctor relented and many on here are doing that. Then again, if your bones are okay, you could do Reclast.

As I have written, my doctors don't use Prolia due to rebound. Some on here are doing 1-3 shots as suggested by McCormick, apparently, then Reclast or Fosamax.

If you have a reaction or problem with a med that most people don't have. I believe you deserve flexibility. And insurance should cover any option since you have "failed" Tymlos and Forteo causes the same issue. Let us know!

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Replies to "@lhankins so sorry! Remind me: how long have you been on Tymlos? Doctors often seem to..."

@windyshores
I started Tymlos in August of 2024; so about 6 months. I had labs done at the beginning of the month and calcium was too high; rheumatologist advised me to stop any calcium supplements and retest in two weeks. I did just that and the calcium was even higher. I have been told to quit Tymlos for a month. The office called me to say they’ve scheduled me for later in Feb. Until then do nothing. Upon the advice of this same doctor I saw my PA today (who has never heard of Tymlos or Forteo). She advised me to wait until I’m on Medicare later in the year and then she can give me Evenity. If this hypercalcemia continues I believe Evenity is out of the question as well. Stated she loves Prolia and I shared that I do not and will not take it. I am not due for a Dexa until September. So…in the meantime I have decided to concentrate on diet, exercise and blood pressure which has been spiking over the last few months. I may look at this differently in a few weeks when I feel better. Thanks again for everything❣️