Hi hun in that arachnoiditis group the administrators hold weekly live meetings. They keep all the information on things that work and things that don’t. I really believe you can connect to someone on there. maybe we can talk and I can find out info for you from my fb arachnoiditis group. My name is Cindy Small. Hope this helps. It won’t let me send you my email . I am sorry. But you can get me on Facebook then we can talk privately though messenger