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Dercum’s Disease: Looking to connect with others

Chronic Pain | Last Active: Feb 5 2:44pm | Replies (145)

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@scarletb

That's interesting to hear about the case manager. I logged onto my health insurance recently and noticed that I had an option to request a "healthcare advocate" - I didn't think much of it, found the information I needed for that day and then logged off.

I probably wouldn't have even thought about it again if I hadn't read your post. I'm off to explore what my health insurance means by "healthcare advocate" - if it's what you describe, I'll be thrilled! Managing this all by myself is exhausting.

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Replies to "That's interesting to hear about the case manager. I logged onto my health insurance recently and..."

You and I are on the same journey. Managing this alone is a never-ending loop of disappointments. A health care advocate and case manager are the same. I think? The person I talked to explained them as an advocate. They will help you find treatments, get approval for doctors and treatments. I think it's at least worth a try. Good luck in your search. If I find anything helpful, I will be sure to post it here. Good luck.