I've had adhesive Arachnoiditis for 14 years now and I'm on a walker now too, I know how you feel I do have some information that may help you. Here is a link arachnoiditishope.com
Charles. I can relate to everything you have said. I am in the last ( in my opinion ) of AA. Called catastrophic. I'm on a walker. I have taught myself to cath and I understand your bowel issues also. Many messes. If you would like to talk you can email me at henryis7yearsold@gmail.com. my name is Sherry. I've had this so long that it took 8 + years to find it. Which was just this past fall even though my Dr knew in April but didn't inform me.
Please reach out bc it helps to talk about what is happening, there is so many but no one specializes in this that I know of except by breading Dr Tenants books. They are informative.
Hi guys, I am also in an arachnoiditis group on Facebook that is quite informative and a great support group. They are also hooked up with Dr. tenant which is an arachnoiditis doctor. He sends out bulletins every week on new stuff if this is of any interest to you. I am Cindy Small on Facebook.
Hi guys, I am also in an arachnoiditis group on Facebook that is quite informative and a great support group. They are also hooked up with Dr. tenant which is an arachnoiditis doctor. He sends out bulletins every week on new stuff if this is of any interest to you. I am Cindy Small on Facebook.
Hi hun in that arachnoiditis group the administrators hold weekly live meetings. They keep all the information on things that work and things that don’t. I really believe you can connect to someone on there. maybe we can talk and I can find out info for you from my fb arachnoiditis group. My name is Cindy Small. Hope this helps. It won’t let me send you my email . I am sorry. But you can get me on Facebook then we can talk privately though messenger
Hi hun in that arachnoiditis group the administrators hold weekly live meetings. They keep all the information on things that work and things that don’t. I really believe you can connect to someone on there. maybe we can talk and I can find out info for you from my fb arachnoiditis group. My name is Cindy Small. Hope this helps. It won’t let me send you my email . I am sorry. But you can get me on Facebook then we can talk privately though messenger
Hi Cindy, thanks for reaching out. First I do have a FB account but I don't know that much about it and I do have messenger too, I will try and look you up... I've had AA for 15 years now, I was seen by Dr Tennant a while back, things are getting worse now,I'm on a walker,we will talk more on something else.
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I've had adhesive Arachnoiditis for 14 years now and I'm on a walker now too, I know how you feel I do have some information that may help you. Here is a link arachnoiditishope.com
Hi guys, I am also in an arachnoiditis group on Facebook that is quite informative and a great support group. They are also hooked up with Dr. tenant which is an arachnoiditis doctor. He sends out bulletins every week on new stuff if this is of any interest to you. I am Cindy Small on Facebook.
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2 ReactionsI'm looking for a support group not on FB but on zoom or Skype any info?
Hi hun in that arachnoiditis group the administrators hold weekly live meetings. They keep all the information on things that work and things that don’t. I really believe you can connect to someone on there. maybe we can talk and I can find out info for you from my fb arachnoiditis group. My name is Cindy Small. Hope this helps. It won’t let me send you my email . I am sorry. But you can get me on Facebook then we can talk privately though messenger
Hi Cindy, thanks for reaching out. First I do have a FB account but I don't know that much about it and I do have messenger too, I will try and look you up... I've had AA for 15 years now, I was seen by Dr Tennant a while back, things are getting worse now,I'm on a walker,we will talk more on something else.