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I am afraid of trying Tymlos and other drugs due to side effects
Osteoporosis & Bone Health | Last Active: 5 hours ago | Replies (165)Comment receiving replies
Did they ever remove the two-year limit? I know that when I had to get it approved recently after switching Part D plans, one of the criteria was that I could not have been on it for two years. Although, that may just be an insurance rule that hasn't kept up with the latest medical rules.
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Forteo's 2 year limit was lifted, in certain situations: https://www.ccjm.org/content/88/9/489
"The revised teriparatide label states that use “for more than 2 years during a patient’s lifetime should only be considered if a patient remains at or has returned to having a high risk for fracture.”
The original 2 year limit was because studies didn't exceed that time.
The black box warning on osteosarcoma has been removed for both Forteo and Tymlos but as far as I know, the 2 year limit remains for Tymlos.
I am going to ask my doctor in early March if I can do more Tymlos because I cannot tolerate Forteo. I have done Evenity and Reclast after Tymlos so far.
The thing is, bone markers showed that Tymlos wasn't effective at 18 months. So these meds' effectiveness may wane and we may need a break before doing more. Again, a discussion I will be having with my doctor. And I will ask how long a break is needed. Right now I have delayed my next Reclast hoping that will make Tymlos more effective, but I am in uncharted territory and do not suggest that for anyone else. And I might not even be able to do more Tymlos.