Oh Lisa, our heads are spinning too! I told my daughter that we really need to record the visits to the doctors' offices so that we can try to make some sense of them afterwards! We are doing everything we can to distract our negative thoughts (she rides, I watch trash tv, we go shopping together, and play with the dogs. Her surgeon told her to do what brings her joy - he is a gem. And you are so right that our minds jump to the worst-case scenarios. We're finding it to be rather like a roller coaster. I've been going to every appointment with her and we talk about it a lot afterwards. This is bringing us even closer together. She is my dear, sweet girl.