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DiscussionI am afraid of trying Tymlos and other drugs due to side effects
Osteoporosis & Bone Health | Last Active: Feb 3 10:51am | Replies (178)Comment receiving replies
Replies to "@laoaca70 and @susanjohnston I miss Tymlos! I have several spinal fractures and felt safe on it...."
@windyshores
My last labs (last week) came back with such high calcium my rheumatologist told me to stop Tymlos immediately and contact my primary care physician. Since he is the prescribing physician and calcium levels have been normal up until taking Tymlos, I feel like he is seriously dropping the ball. Seems like periodic labs should be routine when starting a new med, but I had to ask for it when I started having some symptoms of hypercalcemia. I was taking the full 0.8 and wish I had stayed with the 0.6. Now his office has called me back and he wants to see me in person next month. His philosophy appears to be full dose or no dose. I believe many of these physicians are prescribing while knowing just the basics about the medications; nothing nuanced. I think he’s going to want to do Prolia and I will be declining. Now I’m afraid to lose any gains I may have made with Tymlos. I have an appointment with an Endocrinologist, but not until Jan 2026. I don’t have a primary care doctor, I have a PA and this is way beyond her skill set. Sounds like you have good doctors who work collaboratively with you. Thank you for all of your advice and knowledge on this topic. Looks like I’m starting at square one! Wish me luck😉
This is so helpful and is my plan with starting Tymlos: starting with 1/4 dose. I would like to know more about the rate of increasing the dose. Will you please tell us how many days till you upped the dose? And did you up it by one click at a time?
This is so helpful. Thank you!
Did they ever remove the two-year limit? I know that when I had to get it approved recently after switching Part D plans, one of the criteria was that I could not have been on it for two years. Although, that may just be an insurance rule that hasn't kept up with the latest medical rules.