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Meningioma: Anyone else? I'm frightened

Brain Tumor | Last Active: 15 minutes ago | Replies (339)

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@roz0606

Thank you for your reply.. I'm still trying to get some solutions even after they found one in the cavernous sinus but they reassured me it has not changed since 2022 yet in the recent months my double vision and loss of vision has gotten worse. They have no action plan in place other than to watch and wait. I feel like I'm fighting a losing battle and fear of losing my eye sight.

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Replies to "Thank you for your reply.. I'm still trying to get some solutions even after they found..."

My son lost vision in his left eye (at age 12). At age 27, he experienced worsening symptoms that finally led to the diagnosis of 3 meningiomas that had been growing for years. He had 30 proton beam radiation sessions, and now we wait to see if the tumors are dead. Due to the location of the tumors, they are inoperable. Unfortunately, at age 12, when he first had the MRIs, they missed the tumors. I regret that we didn't push more to find a diagnosis. He's had many health issues over the years, and now we are learning why. It's been difficult.