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Adrenal Cancer: Anyone else have this?
Cancer | Last Active: 1 day ago | Replies (65)Comment receiving replies
I have been where you are and you are not alone, it just seems like it, because there are so few of us that have been told we have adrenal cancer. I was diagnosed in August of 2020 and went through two years of mitotane and 28 treatments of radiation. Being on mitotane is not very pleasant and when you have no one that understands what you are going through,it just makes it harder. I was diagnosed with stage 3 cancer at the time and I just had my ct scan on Jan 24th and still clean. You can do this !!!!!!
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Thank you for responding! When I had a different type of cancer 40 years ago, I was able to talk to survivors and didn’t feel so much like a unicorn. With this ACC diagnosis, I feel like an oddity. Glad to hear someone has been on Mitotane and has had 4?years of no evidence of disease. I have my first follow up CT scan on February 13 and am not too anxious. Mitotane is the worst. Literally poison. For the first month or so, I would sit and look at the pills and finally force myself to swallow them. My husband won’t touch my medication boxes as he is afraid of them. What criteria lead to stopping the mitotane? Did you have side effects all of the two years? Thanks for your help! I posted in the group questions to see if there are others out there who have done well.