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Actonel: Anyone have input or experiences?
Osteoporosis & Bone Health | Last Active: Mar 30 11:29pm | Replies (20)Comment receiving replies
I took my first Actonel weekly tablet last Monday. I became ill very quickly, aches, pains through the whole body, headaches, freezing cold then boiling hot inside, awfully painful stomach cramps, dizzy, blurred vision, loss of appetite, vomiting, constipation and the list goes on… I’ve never had a reaction to any drug before. I went to the doctors on the Friday, he told me to take it again the following Monday to see if I have the same reaction which I have done. I understand this drug has no affect on some people but for me I will never touch it again, it has been an awful experience. Yesterday I went to a different doctor who has suggested I take the 6 month injection instead. To be honest I am so scared to take anything similar now. I’m a 54 year old woman with a T score 1.9-2.2. Is there anyone out there to give me any advice at all please?
Replies to "I took my first Actonel weekly tablet last Monday. I became ill very quickly, aches, pains..."
I had a similar experience. I stated alendronate about 3 years ago. I stopped it about a year ago due to terrible heartburn. My doctor wanted me to take the yearly infusion because “you only have side effects once a year”. My father had a horrible reaction to it that landed him in the hospital for a week. I refused that. I started monthly risedronate nine months ago instead. It wasn’t bad for awhile. I got sick 3 months ago… not sure if it was related. 2 months ago, the day after taking it I woke with weakness, body aches, headache, dizziness that turned into chills, fever, nausea and vomiting. I assumed I had stomach flu because my husband had it a week earlier. Last month, the day after taking it I woke to weakness, headache, stomach cramps, chills, fever, weakness, nausea, dizziness, vomiting and severe body aches. I could hear my pulse pounding in my head. Mucus was running from my nose. I thought I was unlucky and got stomach flu again. I’m not sure what made me realize these symptoms came the morning after taking this med, but I had a hunch and looked up the side effects. I was experiencing 16 of them.
I’m not suggesting anyone should follow what I am doing, but I will not take it again. I will not chance taking an injection or infusion that cannot be taken back if I react to it.
I will take my chances with dietary changes and exercise.
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I was given a prolia shot January 2024- and suffered terrible side effects- including bleeding gums, aches and pains and flu like symptoms. Furthermore my Dr. never informed me you cannot go off Prolia cold turkey which is really bad. After 6 months she put me on actonel 35 mg weekly. The past few months when I eat something bulky i.e. hamburger or pasta I have difficulty swallowing and food feels like it is backing up. I am also constipated. Since this drug affects the espohagus I am not happy and would like to go off it. My Gastroenterologist has prescribed a barium swallowing videography. I am 76 in great shape do weight bearing exercises and do aerobic activity about 10 hours a week. Also eat a lot of calcium producing foods. Also I hear if there are disc issues in the back that could affect the dexa score.