← Return to Diagnosis: Idiopathic Peripheral Neuropathy and Restless Leg Syndrome

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@heisenberg34

Wow! It would take me ten minutes to say what you were diagnosed with. Sounds horrible. I am 77, but still trying to come to grips with the fact that I am elderly(!) and in poor physical condition. Just four years ago I was cycling 30-50 miles a week. Skiing a couple of times a week. Then things changed in a heartbeat.
K
Just a year ago I was doing a lot in and around the house. Not able to do much right now. I feel bad for my wife. We had planned on traveling and camping. That’s pretty much gone.

What kind of PT exercises did they have you doing? I just started and I’m afraid my therapist may just continue with the standard exercises. When I do even gentle exercises, it ramps up my pain to where I have to stop. Did you experience that and just fight through the pain?
Hope you continue on the road to feeling better.

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Replies to "Wow! It would take me ten minutes to say what you were diagnosed with. Sounds horrible...."

Thank you! My exercises are chiefly targeting balance and gait, because that's where pain meds control nothing. At her therapy clinic, my physical therapist had me practice walking on uneven surfaces mainly using adjustable bars or my cane. At home, all my stretch and movement exercises while standing have taken place along my kitchen countertop and sink: leg stretches, squats, side-to-side walking, marching. I was not a fan - lol. At the clinic I always opted for a OneStep recumbent bicycle which engaged both legs and arms, and a vibration plate. Now at home most of my exercises are done seated on a chair without arms, because I have no fear of falling while seated. Backward stretches, side-to-side stretches at waist, "marching". So, exercises are not explicitly for pain, numbness or tingling.
At the beginning of January she discontinued accepting all insurances, including Medicare, because reimbursements had become too low to support the rising living and work expenses that we're all feeling. I have not looked into another therapist (yet?) - her hands-on myokinesthetic treatments absolutely helped with the pain and discomfort in feet and hands. But I did invest in a recumbent bicycle and a BEMER system which I also was using at the clinic. Best to just google that if you're curious - it's complicated but I am elated with the decision to purchase my own.
If I had pain during any exercise, I was to stop and she would have me try another approach. This also was the case with my O.T. at the same clinic, treating the carpel tunnel and neuropathy in my hands. I was never into athletics, even as a young person, but my husband and I loved to camp (glamp for me - ha) and do day trips. He passed 11 years ago and I sold the camper. I share your sadness at having a disappointing adjustment to life in a new normal ~ but I can't complain ~ God gave us so many good years, times, and memories. I'm super thankful for them all.
I wish you better days and nights ahead! And also, answers for treatments that are restorative and affirming. Keep us all posted if you can.
~ Barb