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Help with Chronic Fatigue Syndrome

Just Want to Talk | Last Active: 1 day ago | Replies (68)

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Hi! My CFS started a looong time ago and took years to get the diagnosis. My PCP wasn’t very helpful thinking it was just depression— don’t except that if you differ with that answer. My Neurologist (hx of migraines) helped me to get some relief! He ordered a series of “autoimmune blood work” and a “Small fiber tissue biopsy” which revealed some interesting results! I was tested positive for Small Fiber Neuropathy and have a vitamin B/folate deficiency. This news was alarming since no other physician had done this— a vitamin deficiency! Needless to say, I was told to take Vitamin B Complex & Folate 800 mcg every day— made a significant improvement to my quality of life!
I still have CFS and the fatigue and other symptoms are still debilitating, but having some of things confirmed made me feel better! I’m afraid this journey is a long one…. *Ask your Doc to order a Homocysteine level— mine was high!

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Replies to "Hi! My CFS started a looong time ago and took years to get the diagnosis. My..."

@madnar0019
Do you still have symptoms of SFN? I have been battling this since being diagnosed in 2011. Was the Vit. B Complex & Folate 800mcg for the SFN and is it two medications or one? I am on Nortriptyline, refusing Gabapentin, Lyrica, etc.