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Diagnosis: Idiopathic Peripheral Neuropathy and Restless Leg Syndrome
Neuropathy | Last Active: 14 hours ago | Replies (13)Comment receiving replies
I hear so many who have been diagnosed with neuropathy talking about tingling and numbness. My EMG supposedly revealed neuropathy. But I have severe pain, not much in the way of of pins and needles and numbness. Does anyone else have a similar experience. I just started PT in hopes of restoring some muscle strength,
Replies to "I hear so many who have been diagnosed with neuropathy talking about tingling and numbness. My..."
I was diagnosed with Idiopathic Poly Neuropathy in my feet and lower legs several years ago, and like you, I experience more pain in my feet than the numbness and tingling. The numbness is still there, it causes my balance issues, since I can't feel the bottom of my feet any more.
It is definitely frustrating. I'm taking 3600 mg of Gabapentin a day to help dull the pain, but it's only marginally helping.
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Hello, @heisenberg34 ,
I was diagnosed with distal symmetric axonal-demyelinating sensorimotor peripheral neuropathy in 2021 after years of severe pain during the night. It would start around 9:30 or 10:00 p.m. and at its worst presentation I could do nothing but literally scream into my pillow. Pain that severe usually lasted "only" 10 minutes or so.
Now, after 4 years of P.T., a number of lesser-known but very effective therapies, and the right combination of Tramadol and Pregabalin, my symptoms are more in line with what you are describing. About a year and a half ago restless leg syndrome showed up and I've been on Ropinirole for it (very effective). I'm 78, live in Iowa, and maintain my own home.
I pray you will find the therapies that ease your symptoms and restore muscle strength.
Peace, Barb