I had no idea this site was even available to help. I am in a small town in Oklahoma. Sloan and Mayo both have great reputations for staying ahead in treatments. It all happened so quickly I was blindsided. I was perfectly healthy but then developed a tic on the right side of my face; then slowly started to lose movement. I went to an ENT who (thank goodness) recognized the symptoms and sent me to a head and neck oncologist, and within a week I had surgery and 2 weeks later radiation began. There was very little information about acinic cell carcinoma and I understood they weren't sure what worked and didn't work. The tumor had grown and involved my facial nerve and they had to cut the nerve. The right side of my face is paralyzed, but I am alive. I lost my hair on that side and suffered minimally from dry mouth and dry eye, but those are minor things. I pray you continue to do well.