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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 5 days ago | Replies (344)

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@donnyboy

@astanko
Were you off Prednisone, or tapered down from it, with this first transfusion?

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Replies to "@astanko Were you off Prednisone, or tapered down from it, with this first transfusion?"

My assumption was that Prednisone was specifically used to cut down inflammation and that Clippers brings along inflammation with it. My doctor has me also on Azathioprine. I want to either cut down on Predisone and eventually stop or switch to something like ribuimab. What are the consquences? I'm a newbie at this. My next doctor appt is on Feb 4 and I want to be fully prepared to make a case to reduce or stop Prednisone. I'm diabetic and Prednisone causes my blood sugar to spike.

I weaned off Pred within 8 months of my acute phase. I started Ruxience right around that time (Oct 2022 I believe) and have been on only that (no Pred) ever since. I get an infusion every 6 months. I’ll report back on the dosage (I need to look it up). I have been on both Ruxience and Rituxan with no side effects. The infusions are super easy, just sit in a chair for a few hours hooked up to an IV. A rather lovely time to snooze or read.