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Profile picture for windyshores @windyshores

@sirene I had a grade 3, stage 1 (1.5cm) tumor that was mixed ductal and lobular. I was first told, after biopsy, that it was HER2+, then after surgery, with 3 opinions, got several equivocals followed by negatives.

I had a low Oncotype score despite the grade 3 and relatively high ki67%. No radiation or chemo, 5 years of letrozole. Double mastectomy.

I also had lymphovascular invasion which is not included in staging or in Oncotye testing but I have read it is equivalent to one positive node.

I am ten years out knock on wood.

Breast Cancer Index folks told me they were changing their classification of risk. At 5.7 % I was "high risk" on the BCI, but this was the same as Oncotype's "low risk" at 6%!

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Replies to "@sirene I had a grade 3, stage 1 (1.5cm) tumor that was mixed ductal and lobular...."

Thank you @windyshores. I need to call the Breast Cancer Index people to see what they are saying about mine. My Oncotype score was 21 (I am 66) with 7% chance of recurrence and the BCI is 5.4.
Was your Ki67 the same from the biopsy as it was for the surgical pathology? Mine were different. The biopsy was much higher on mine, 41% as compared to 14.9% on the surgical pathology.

Congratulations - 10 years a long time!
I have never read or been told that lymphovascular was equivalent to one positive lymph node.
Where you nodes biopsied?
Did oncologist tell you this?
I also had a high ki 67 of 20% with onco score of 4.
Such