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Already on oxygen - diagnosed with DIPNECH: What happens next?
Neuroendocrine Tumors (NETs) | Last Active: Feb 4 6:28pm | Replies (23)Comment receiving replies
@gprior Sorry to hear that. Ask about microwave ablation to destroy the tumor, but preserve the surrounding healthy tissue. If your tumors are slow growing like mine, not every tumor necessarily needs to be removed unless it's causing a particular issue. They have no intention of ever destroying all of mine because there are just too many. They are monitoring for any tumors that start to go rogue.
Have the lobectomies left you short of breath or what impact did that have? Painful recovery?
Replies to "@gprior Sorry to hear that. Ask about microwave ablation to destroy the tumor, but preserve the..."
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May I refer to you as California? Thank you for your input. My first lobectomy was done because I had numerous nodules/ tumours but one was 2cm×1.9cm and apparently needed to be removed. Recovery was about 8 weeks and afterwards i was a little more short of breath.The 2nd op last Oct was because again numerous nodules but one larger one that was close to the heart wall needed to be removed so again the whole lobe was removed, unfortunately I had complications a day after this op and was back in surgery for another op, this has left me quite short of breath even tho I am still doing the breathing exercises and yes this time it's been a painful and long recovery, I had setbacks after I came home such as a virus that caused such a lot of added coughing, today I find out what they want to do with this 3rd lobe, but I'm reluctant to have more surgery as I'm still recovering and yes veryshort of breath at times. Hope you are OK, do you have dipnech??