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Tymlos and Elevated Blood Calcium Scores

Osteoporosis & Bone Health | Last Active: Feb 5 1:39pm | Replies (28)

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@8fish

Hi @wudalife2 (and anyone else who’s still around on this 7 month old thread!). Recently, while I was on my 17th month of Tymlos, I took a 24-hour urine calcium test which showed I had a high (364 mg.) calcium level. Though I hated to stop Tymlos early, I decided I’d better before I formed a kidney stone. I am very disappointed to have to stop early, because after one year of Tymlos my Dexa showed great improvements in my spine. I feel blessed to have been able to take it for 17 months, but very disappointed that I couldn’t take it for the full 24.
I wanted to follow-up with Evenity, but my endo was afraid I’d lose most of what I’d gained with Tymlos. I sure would NOT want to do that! He recommended reclast and, as a second choice, alendronate. I chose alendronate and had my first pill on Saturday. He says I need to take at least a year of it before considering going to Evenity. I’ve been bummed about this all week because I know the gains from Evenity will be blunted after I’ve taken alendronate. I just don’t know by how much.
I’m sorry you had to quit taking Tymlos, too, @wudalife2. If you’re still reading this thread let us know what you decided to do. Whatever it is, I hope it worked out well for you.
Take care, @8fish.

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Replies to "Hi @wudalife2 (and anyone else who’s still around on this 7 month old thread!). Recently, while..."

Hi @8fish. My GP has referred me to a new endo (mine is retiring), but I've put off seeing him. I'm coming up on my annual physical in two weeks, so I'm sure that I'll soon learn from my GP what my Dexa shows. (The physicals are very thorough.) If there's been any further deterioration, I'll start with my new endo and follow his recommendations. I know that my behavior isn't logical, but I've also been dealing with two more serious diagnoses in the past year. I don't think I was ready for one more new doctor.

I'm thrilled to hear about the progress you made on Tymlos and I'm sorry you had to stop it. Thank you for sharing about the one year break you have to take before starting Evinity. I hope that your Alendronate successfully maintains the progress you made on Tymlos until you can start Evinity. In my case, since I've taken a year off anyway, I may be able to start Evinity right away, if my upcoming Dexa isn't great. I wouldn't know that if it wasn't for you!

Wishing you continued good results. Thank you so much for your post!