← Return to Aggressive appendix cancer and right hemicolectomy: Chemo worth it?

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@isadora2021

@dnfjc NED means no evidence of disease. There may (or may not) be minute cancer cells that cannot be picked up on tests unless they grow bigger into tumours.

I feel great after treatment and have been so fortunate not to have any lingering side effects other than needing to manage my hydration and fibre carefully. I had a colon resection to remove diseased tissue and I can get constipation. I was fortunate not to need a bag (temporary or permanent) after my resection.

Given how aggressive your appendix cancer was, I would be inclined to have chemo to mop up if I was you but to avoid oxaliplatin (Folfox) if you can due to neuropathy. I had Folfiri and have no neuropathy.

Please let us know how you go 🌺

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Replies to "@dnfjc NED means no evidence of disease. There may (or may not) be minute cancer cells..."

When I went in to oncologist first time she told me to call in a week with decision chemo or no. It was the holidays so I waited until yesterday to go in. Dr told me the option wasn’t there any longer because if there are bad cells they will already be out. Too late for chemo. She also said if did chemo it was very iffy if it would help or not. Like 5%. So my hard decision was made for me and I am relieved. No chemo. Bloodwork good and ctscan in February. That will ease my mind. Dr felt it was the right way to go and because no cancer present after Colectomy and 20 lymph nodes all clear
and markers all clean. Thanks for asking. How long have you been NED?