← Return to Diagnosis: Idiopathic Peripheral Neuropathy and Restless Leg Syndrome

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@johnbishop

Hello @mikead63, Welcome to Connect. I have idiopathic small fiber peripheral neuropathy with just numbness and some tingling but no pain. I posted my neuropathy journey along with other members in another discussion here https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

My best advice is to learn as much as you can about your condition and what treatments may be able to provide some relief since there really isn't a cure. A good place to learn more is the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/living-well/. Another good site for learning about neuropathy is Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview.

One thing that really helped me was being able to connect with others here on Mayo Clinic Connect where I could learn what has helped them. A good place to start is to scan through the list of discussions in the Neuropathy Support Group here to find ones that you can relate to the symptoms - https://connect.mayoclinic.org/group/neuropathy/.

What symptoms bother you the most?

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Replies to "Hello @mikead63, Welcome to Connect. I have idiopathic small fiber peripheral neuropathy with just numbness and..."

Thank you John! I really appreciate your recommendation and will definitely follow up on them! The symptoms that bother me the most at this time happen when I sleep. I wake up with burning sensations in my feet along with feeling like my feet and ankled are hard and my toes are difficult to move. Almost like my feet are a different part of my body.