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@windyshores

@mary1951 I have saved my kids from medical providers many times over, and my mother too. One of my kids has asthma and they wanted to discharge her from the ER (toddler at the time) because they didn't hear a wheeze. You need air to make a wheeze and she was too blocked to make one. I refused to leave and asked them to test her oxygen and she was in the hospital for 10 days. Anyone with type 1 diabetes views hospitals as dangerous and knows that providers- even ICU's- know nothing about management. I could go on and on.

I view the most important job I have right now is to protect myself from medical harm. Ten years ago I had my first afib episode, and a cardiologist wanted me on anticoagulants and heart meds right away. I am still not on meds and found a doctor who supports that and provides "pill in a pocket" meds to take with my still once a year episodes.

I had cancer and got 4 opinions before deciding what to do.

This is why I wrote that finding the right doctor is absolutely key. We need doctors to prescribe. Sometimes I wish we could prescribe for ourselves! So the key remains finding a doctor who listens, cares, and basically is flexible enough to follow our wishes and needs.

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Replies to "@mary1951 I have saved my kids from medical providers many times over, and my mother too...."

@windyshores, Yes, ultimately finding the right doctor is essential. In the mean time, we need to always advocate for ourselves.

Thankfully, you advocated for your daughter. My 4 year old grand-daughter came down with double pneumonia and ended up in the hospital for a month. They put her on a respirator and into an induced coma. I believe they made decisions that saved her life.

There's good and bad in every profession. I just feel that paying out bonuses to doctors who prescribe expensive drugs is blatantly wrong and a conflict of interest.

I went to PT yesterday, and the lady therapist who was helping me told me she was put on Fosamax for mild osteopenia and it affected her esophagus so much that she couldn't eat or swallow and had to have her esophagus stretched twice.

Stories like that make me shake my head. The stories about reactions to Tymlos on drug.com
are horrifying and the drug only gets a 4.7 out of 10 rating. A couple people on that site said there was no improvement in their scores either! Yikes.

I am going to try it, and hopefully I will have a positive testimony about the drug in the future.
Thanks for all your feedback, which has been encouraging and not discouraging.