Hello @leetaanderson
Yes, jaw pain and when chewing your jaw gets really tired. Also temple pain, scalp tenderness, fatigue and blurred or double vision.
I was having pain in my temples, but it was only mild at first. Later it felt like I was laying on a garden hose, it was a weird feeling but not very painful. What really bothered me was that every morning my top teeth felt like they were moved out of place, that hurt. Then a week later I also woke up and felt like someone had grabbed my tongue and pulled very hard, and I couldn’t open my mouth wide enough to eat my cereal that morning. At first I thought of Tetanus (lock jaw), but then it clicked —-temporal Arteritis /Giant Cell Arteritis.
I believe so many people have different symptoms but the doctors think you have to have all the classic symptoms and same with the blood test results.
That is why I had to push to have the temporal artery bypass done. And I was scared because , if left untreated, you can lose part to all of your vision. Some people regain some vision but a lot do not. I have been blessed that my vision is not affected.
I was started on 60mg of prednisone and then after 2 months on a fast taper, which did not work. I have been on a very slow taper and am down to 3mg a day now. I also had Actemera infusions but had to stop because of getting COVID twice in a short time period, and the flu, even with the vaccines, my immune system is depleted.