← Return to Living with LPSVS (long post-COVID vaccination syndrome)

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@arichards3

@lnizz Welcome to SC, I live just south of Charleston and see medical professionals at Roper and MUSC. While I think highly of both systems and the professionals that work there I have achieved zero results on my LC since I experienced symptoms in November '21 (from my first and last Moderna booster). They are all hard working professionals trying to help, but as many of us will attest, they for whatever reasons don't know what to do. They have done what they know to do which is test the usual tests which do not pick up any of the LC causes. I went to Mayo Rochester in September '23 after working my way through (and standing in very long 'time' lines as you mention) locally. Mayo tried their best, and maybe they have a new working theory, but I was not cured by Mayo's approach. I did learn moderation which has helped me manage the symptoms and not crash. I have turned to 'Dr YouTube' in search of credible medical professionals working on LC cures. I became very interested in Triple Therapy and the approach that Dr Bruce Patterson and his team use. I chose to pursue Dr. Patterson's program. It emphasized finding the root cause and keeping the story short is inflammation. I started with his proprietary blood test and lo and behold I have several interleukin ranges way out of bounds and several others slightly out of bounds. I am actually excited (I know that sounds crazy) to have found something wrong with me that shows up in tests! I am on day 12 of his treatment plan that is a 3 to 6 month program with an 80% success rate. His talks on YouTube 'scratch my itch' of finding root causes that causes symptoms and not endlessly droning on about symptoms. He plainly states "we aren't testing for the right things" and "how can you solve something when you don't know what is wrong". He is a Michigan undergrad, Northwestern Med School grad, ran a large program at Stanford, and was involved in AIDS research and solutions. Highly recommend you spend the hours necessary on YouTube and Googling to find something works for you. I wish you the best in your journey to better health.

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Replies to "@lnizz Welcome to SC, I live just south of Charleston and see medical professionals at Roper..."

Thank you for sharing this. I wish you well and am anxious to hear about your outcome.

Wow thank you so much for your response!! I am so glad that I found this discussion because I legit feel like my life is over. I already went ahead and ordered the DETOX plan with the 3 major vitamins, I have been and am continuing my chiropractic treatment, craniosacral therapy, inflammatory RA medication, vertigo supplements, sleep supplements, and obviously now that I am coming to learn about this crazy syndrome I am reaching out to my medical team at MUSC about what to do next, I have also dived into looking at the upcoming new ICD-10 codes to see if anything has changed due to the presence of thousands of patients that are in the same boat as us all. Just today I found out an older lady that I know in Buffalo NY got DENIED SSDI BECAUSE OF THE VAX?! How can NYS do that??? They mandated the vax which brings me to 2025 39 years old barely being able to make it outside for 10 minutes. I am glad mine was transferred to SC, do I have hope it will get approved who knows, all I know is I want my life back. Thank you so much for sharing and I am in the process of following exactly what you said in your response.