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@maryvc

This is a great thread. I agree that it’s a moment to moment journey. My husband reacts best to a smile, patience, a kiss, and as if his needs are the only thing in the world. Since I also have needs I’m not always the perfect caregiver. I need sleep and a break so that I can react with perspective.
I have no idea how this is all going to land. I know I’m breaking rules. Doing my best and I see that you are all doing your best too.

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Replies to "This is a great thread. I agree that it’s a moment to moment journey. My husband..."

Are there rules? I feel like this is the old Wild West and there are no rules. We are mostly on our own.

That's all you can do hon. I have proceeded to have my hubby's Primary Dr call in the CPAP machine. He is sleeping 24/23..up maybe an hour..he does have sleep apnea as well but wouldn't wear the mask before. I told him nicely choices: St Elizabeth intake sleep apnea study or mask at home of course he chose later. Dementia and sleep apnea have similar characteristics so I want some answers sleep apnea or dementia? He is not eating..he's weak and this is scary so I am going to try to help him. He is lashing out at me and I could cry as I have lack of sleep because of him and I am devoting myself to his health but yet he claims I am not doing anything for him....I zip my lip!