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Ethambutol - side effects

MAC & Bronchiectasis | Last Active: Jan 31 7:47am | Replies (19)
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@mariegrace

I started Ethambutol first also. The headache diappeared then added Azithromycin 3x a week. Did ok M-F but weekends i was in bed with cramping that lasted 24 hours.
Contacted my pulmonologist and ID that I cannot tolerate the drug course. Both said to stop, do regular airway clearance and chest CTs every 6 months. I also asked my pulmonologist to order the Vest and pul rehab.
Of course I am scared my lungs will get worse. I have difficulty with drugs.
Good Luck!

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Replies to "I started Ethambutol first also. The headache diappeared then added Azithromycin 3x a week. Did ok..."
circleup | @circleup | Jan 30 7:46am

I dont tolerate the drug regimen very well either, been 6 months so far. The rafampin gives me chest pain and elevates my BP. BOth doctors said full steam ahead. I am asymptomatic, except for short of breathe and fatigue. I want to stop the treatment! I am going to have the conversation about doing active surveillance every 6 months and stop all this. What Vest are you referring to? Just curious

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