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@isadora2021

@dnfjc I was diagnosed with stage 4 appendix cancer in 2021 so I’m not in the same situation as you are. I had initial debulking surgery followed by 6 months of Folfiri and Avastin.

I don’t get to communicate that often with other appendix cancer patients as there are not that many of us. That rarity has made treatment more difficult.

I’ve been NED since HIPEC in mid 2022.

From a low chance of making 2 years I have a 70% chance of making 5 years.

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Replies to "@dnfjc I was diagnosed with stage 4 appendix cancer in 2021 so I’m not in the..."

Yes, not many to compare with for appendix cancer. That’s why I’m trying this forum. How do you feel after treatments? What does NED HIPEC mean?
I was lucky my aggressive appendix cancer was all contained with mucosa except for perforation is the risk. Dr removed whole specimen and then a month later I got right come to my and 20 lymph nodes removed. Pathology showed everywhere clean.