My next scan will likely be in May. I haven’t scheduled it yet.

I'm not sure when I have my next scan. In fact, all I have had is a brief phone conversation with my doctor so far. I see her at the end of the month after we redo the pulmonary testing to compare to a few years ago.

This process has taken almost 4 years. Being a working class person without access to the top doctors, I was put in with the fellow who had no way of diagnosing this. For four years they told me that I did not have COPD, asthma, restrictive, even ILD. They said they had no idea why my lungs weren't working. Of course, they never did a CAT scan.

I was lucky enough to have a cardiologist with friends in the pulmonolgy department who convinced a doctor to see me. Otherwise I would be one more woman misdiagnosed, and not treated. As it is, even with a history of lung problems, it took me years to even get a doctor to believe me when I explained my difficulty breathing even after ten years of oxygen at night.

Right ow I am just angry. If the point of all this is to make sure you don't progress to needing oxygen, where does this leave me?