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@californiazebra

I’ve had my first significant change recently. 3 months ago it looked like I had a few new tumors in my lower lung, but they also saw 2 of my DIPNECH/NETs tumors appear to be blocking that area so it may just be trapped mucus. I just had another CT scan after 3 months instead of 6. Looks stable but not improved as hoped. They are still leaning toward trapped mucus but no way to be sure based on the CT. I’ll have the next CT scan in 3-4 months to monitor any changes. No significant change in symptoms or signs of infection. I am concerned with 50+ tumors that more areas could become blocked over time.

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Replies to "I’ve had my first significant change recently. 3 months ago it looked like I had a..."

Hello @californiazebra

I am sorry to hear of the changes in your CT scan. I am glad to hear that there have been no significant changes in your symptoms. Please keep me posted on how you are doing. When will you have your next scan?