Replies to Hello Rob39, I am a fellow Aussie, 47 and recently diagnosed with Syringomyelia T11 – L1…

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Spine Health | Last Active: 2 days ago | Replies (81)

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@fridaygirl78

Hello Rob39,
I am a fellow Aussie, 47 and recently diagnosed with Syringomyelia T11 - L1 6cm long and 3cm wide. I'm a public patient so haven't seen a neurosurgeon got an appointment in two weeks. I already predict they will refer me back to neurology. I have pain on lifting, housework & standing. Ive had pins and needles for years blamed on everything from my Psoriatic Arthritis, Fibromyalgia and Chronic Fatigue. How have you progressed in your diagnosis & treatment?
Thank You
FridayGirl78

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Replies to "Hello Rob39, I am a fellow Aussie, 47 and recently diagnosed with Syringomyelia T11 - L1..."

Jennifer, Volunteer Mentor | @jenniferhunter | Jan 28 2:34pm

@fridaygirl78 I wanted to welcome you to Connect. I don't have experience with your condition, but here is Mayo's information if you want to learn more. I hope your doctors can offer help for your pain.
https://www.mayoclinic.org/diseases-conditions/syringomyelia/symptoms-causes/syc-20354771

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rob39 | @rob39 | Feb 2 12:44am

Hello Friday Girl78.
Since I submitted my post about my syringomyelia I have had some other health issues develop, my polyneuropathy developed quite rapidly to CIDP (please google) this has been time consuming with diagnosis procedures and now treatment, IVIG now for 9 months. Heart issues are also involved. So the syringomyelia is something that I will have to live with. Hoping you will get the help you need and wishing you all the best.. Rob39

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