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Living with LPSVS (long post-COVID vaccination syndrome)
Post-COVID Recovery & COVID-19 | Last Active: 5 hours ago | Replies (141)Comment receiving replies
I am finally seeing what has been coming out about long term effects. 3 years post Moderna BOOST mandated by my lovely old state of NY, the healthy MMA fighter that I was at the end of 2019, I am now struggling to live each and everyday. NEVER HAD, NOR DIAGNOSED WITH ANTIBODY OR COVID. I now have Rheumatoid Arthritis which comes with complete inflammation of my entire body, I have nodules ,lumps that have now formed on the palms of both hands (I feel like an "amphibian". The dexterity in my right hand is shot. I suffer from vertigo, extreme fatigue, extreme muscle pain, and vertigo. I will be 40 in May. I went from working 7 days a week just a few years ago to waiting on APPEAL of my SSDI. I never thought in my life that I would feel the way I feel right now. I have not had any sort of "vax" since bootcamp in 2003. I do not partake in the flu shot. The year before my initial shot I was training 6 days a week in mixed martial arts living a clean and healthy lifestyle. Now every single day is a crapshoot. I am now coming to light of this entire situation. I have seen- Neurologist, rheumatologist, psychiatrist, hand surgeon, endocrinologist, OBGYN, multiple blood work, imaging, and studies (3 sleep studies after diagnosed insomnia). I waited in NYS to see a Rheumatologist 16 MONTHS to diagnose the inflammatory disorder. I now reside in South Carolina and am getting set up with doctors at MUSC, but I literally came to light of this a few days ago.
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@lnizz Welcome to SC, I live just south of Charleston and see medical professionals at Roper and MUSC. While I think highly of both systems and the professionals that work there I have achieved zero results on my LC since I experienced symptoms in November '21 (from my first and last Moderna booster). They are all hard working professionals trying to help, but as many of us will attest, they for whatever reasons don't know what to do. They have done what they know to do which is test the usual tests which do not pick up any of the LC causes. I went to Mayo Rochester in September '23 after working my way through (and standing in very long 'time' lines as you mention) locally. Mayo tried their best, and maybe they have a new working theory, but I was not cured by Mayo's approach. I did learn moderation which has helped me manage the symptoms and not crash. I have turned to 'Dr YouTube' in search of credible medical professionals working on LC cures. I became very interested in Triple Therapy and the approach that Dr Bruce Patterson and his team use. I chose to pursue Dr. Patterson's program. It emphasized finding the root cause and keeping the story short is inflammation. I started with his proprietary blood test and lo and behold I have several interleukin ranges way out of bounds and several others slightly out of bounds. I am actually excited (I know that sounds crazy) to have found something wrong with me that shows up in tests! I am on day 12 of his treatment plan that is a 3 to 6 month program with an 80% success rate. His talks on YouTube 'scratch my itch' of finding root causes that causes symptoms and not endlessly droning on about symptoms. He plainly states "we aren't testing for the right things" and "how can you solve something when you don't know what is wrong". He is a Michigan undergrad, Northwestern Med School grad, ran a large program at Stanford, and was involved in AIDS research and solutions. Highly recommend you spend the hours necessary on YouTube and Googling to find something works for you. I wish you the best in your journey to better health.