Replies to No other doesn't. I have three masses. Abdomen groin and chest right beside my aorta. Mine…

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Neuroendocrine Tumors (NETs) | Last Active: Jan 28 6:10am | Replies (10)

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@cynthia2121

No other doesn't. I have three masses. Abdomen groin and chest right beside my aorta. Mine have all come back benign with biopsies. Ive had so many damn tests the past year I'm tired.
Spoken with a surgeon last week. Surgery, like an open heart surgery pending blood tests, 24 hour urine and BP tracking.
Have you had PET s ans and biopsies?
Quite rare to have a paraganglioma anywhere other then the neck!

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Replies to "No other doesn't. I have three masses. Abdomen groin and chest right beside my aorta. Mine..."

Teresa, Volunteer Mentor | @hopeful33250 | Jan 28 6:10am

Hello @cynthia2121 and welcome to Mayo Connect. I see that you are dealing with paraganglioma, a rather rare tumor. I found some information about this disorder on Mayo Clinic's website. Here is a link to that information,
https://www.mayoclinic.org/diseases-conditions/paraganglioma/symptoms-causes/syc-20575682
This sounds like a recent diagnosis for you. How long ago was the diagnosis? Are you experiencing much discomfort from these various tumors?

I look forward to hearing from you again. Will you continue to post with your questions and concerns?

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