Thank you for responding. I hope you are feeling better on the 5 mg. 🙂

I have a friend, who was also on Tamoxifen for DCIS. Since she had many side effects from it, her oncologist continued to reduce her dose to 5mg. She also developed a thickening of her uterus. A biopsy indicated that it was negative for cancer. She then developed a cyst on her ovary which was thought to be benign. It was monitored by ultrasounds. She was told that most of these cysts go away on their own. The cyst continued to grow and began to cause pelvic pain. It is my understanding that biopsies are not done on ovarian cysts without being surgically removed. It seemed to take a while before the surgeon saw her reports. Once he did, he decided that her ovary should be removed ASAP. The ovarian cyst was tested during surgery and was found to be malignant with a rare form of cancer. She had a complete hysterectomy because of her cancerous ovary and the condition of her uterus.
I am not trying to frighten you. My goal is to encourage you to be vigilant and advocate for yourself. Getting a second opinion can be beneficial in helping to decide on a plan of action. Listen to your body. You know it best. No one is anxious to have unnecessary surgery. For months, my friend's doctors also felt that having a hysterectomy was too aggressive. She is recovering well from surgery and was told that her prognosis is good without taking any more Tamoxifen. BTW she is being treated at a renowned cancer center.
I wish you and everyone (including myself) who has breast cancer to be well and have a good quality of life.