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MAC - To treat or not

MAC & Bronchiectasis | Last Active: 9 hours ago | Replies (28)

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@busybeans

I have heard from my local pulmonologist that he is able to coordinate with a couple of the ID docs at NJH. However, my doctor is not easily reached as he travels all over the world speaking about NTM. But I do feel comfortable with my local doctor making whatever call he feels is necessary. What I am totally uncomfortable with are the local radiologists who read my CTs. They are so accustomed to seeing Valley Fever, that NTM/bronchiectasis seem to stump them. One of the reasons I first went to NJH was because the report on my first CT scared the pants off of me. According to the radiologist I was near death...obviously I was not. When my NJH doctor sees me, he first goes over my CT scan (done there) in detail before even reading what his own trusted radiologist has reported. On a couple of occasion, he's not agreed with the report. (I know I got a little side-tracked here...sorry!)

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@busybeans this is helpful to hear. My local pulmonologist does not agree with the radiology CT reports (3 of them) but says she defers to radiology. The points of disagreement are significant so for the pulmonologist to just throw up his hands is frustrating and confusing. Looking forward to going over the imaging at NJH and hearing their take on it all.