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Spinal cord stimulator support
Chronic Pain | Last Active: May 10 5:08pm | Replies (195)Comment receiving replies
Yes I've noticed when the leads moved it feels different. The first one SCS when the leads moved it felt like a 500 lb man was sitting in my chest and I couldn't breathe. It hit nerves that squeezed my chest and had to be shut off immediately. This time I kept feeling the vibration but no serious pain just annoying. Laying in bed and suddenly vibrating when I'm trying to sleep. I would feel it all different times so it wasn't just positional.
Now the Dr who installed my 2nd one will not fix the issues just remove it period. His partner said he would remove entire device and install a new one. It seems they don't just move the leads. Maybe for me it's because of where they were placed on in thoracic and one in lumbar. The entire purpose of the SCS is to get relief and let us get back to living a somewhat normal life. If we can't bend over, twist or literally have to watch every single move we make how is that a normal life. Even with my SCS I'm still in pain meds to have a more comfortable daily life, without them I would be in bed or on the couch every day. Hopefully your Dr can come up with a plan of attack to adjust your leads and not remove and replace.
Replies to "Yes I've noticed when the leads moved it feels different. The first one SCS when the..."
@greg72 I'm scheduled for a spinal cord stimulator Boston scientific and I asked the doctor if they improve their anchors on the leads because of the lead migration problem and apparently they have constantly been trying to upgrade them to alleviate the problem so I guess I'll find out however for the first 4 weeks I can't bend my back or lift anything so that they can kind of bog themselves down. So I'll guess I'll find out if they've improved it
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@greg72 I hope I don’t go thru what you have . I hope they don’t remove it hopefully they can fix the leads. I just found out last night I have an extra translational S1 disc I guess it’s rare only 1-6% that have it. Biggest problem I have is people want to come up and Pat you on the back they don’t know how bad that hurts and 3 weeks after my surgery I was setting at a table and an old friend come up behind me and started twisting me 😡 then the next week the Incompetent NP Says it might be a set back but you can start bending, twisting and lifting up to 25 lbs 1-1/2 later I still can’t hardly carry a gallon of milk. So I went home that night after showering bent to dry my legs and felt a burning that has never improved. I went to the surgeon with a list of my new symptoms all he said is why you here, never got me out of the wheelchair to check me I could rub my tailbone and the pain went straight to my testicles I don’t think I’d be making that up. His final thing was go get a Stimulator !