I really related to your well-chosen description “living in a state of limbo and anticipatory grief”. My husband of 14 years (second marriage for both) was diagnosed with MCI due to Alzheimer’s disease in 2019 and now it’s Moderate Dementia due to AD. Typically I’m very much a planner but now everything is fluid. It’s so anxiety provoking. I’m trying to make plans about future care, including possibly going into a memory care unit but the variables are monumental in trying to assess what’s next. One day life is uneventful and the next his symptoms are exacerbated. His balance and gait problems resulted in 9 falls in the last 6 months, 2 into the lagoon in our back yard in Florida. (We have a yard man now so that’s fixed that problem.) One night at 2 am he fell getting out of bed because he had a fever that results in a spike in all dementia symptoms. I was overwhelmed and called the fire dept non emergency basis for help with fallen individual. I laugh now but imagine … 2 fire/rescue trucks arrived and I had 8 very large (quite handsome) firefighters all in my bedroom at one time. So there are moments of humor along the journey 🤪. I’m still trying to make plans though …..