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what does the community consider a normal SED rate for GCA/PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Feb 2 9:26am | Replies (28)Comment receiving replies
My ESP and CRP have been normal from the beginning, causing my internist to hold off prescribing prednisone. For three awful weeks, he was convinced I had RA or fibromyalgia.
Then put me on a fast taper until he was convinced of diagnosis. I understand he was being careful not to start a prednisone regime requiring a long taper but I had trouble convincing him. I told him I was quite sure, that I’d read all the other patients descriptions on Mayo Connect! He scoffed and seemed quite annoyed that I actually got info from another source other than him. He remarked in a visit report that “patient has been on the internet and thinks she has PMR”! Meanwhile he relented after a month and prescribed Pred but still said diagnosis was wrong. I carried on tapering and after 10 months I’m at 3/ 3.5 supplemented with 2- Tylenol arthritis 3x a day. He finally agrees with me and thinks I should be done by April. We’ll see…..
Thanks to you all for this great site. I appreciate all your insights. Xx
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Please taper your Tylenol as well. I am allergic to aspirin and all NSAIDs (Non-Steroidal Anti-Inflammatory drugs) and used 3000mg Tylenol as my OTC pain management for several early years of my PMR journey. I am now sensitive to Tylenol and will get hives at 3000mg, yes hives, when I take that much for several days in a row. I can now only tolerate about 1000mg per day. My allergist says it is real and very rare, it happens, albeit rare. Now I take warm showers and a glass of wine some evenings.