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MAC - To treat or not

MAC & Bronchiectasis | Last Active: Feb 2 2:17pm | Replies (34)

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@detsdum

@busybeans Thanks for the info on Scottsdale. Does Nat Jewish coordinate with your local doctor in case you would have a situation where you needed urgent care?

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Replies to "@busybeans Thanks for the info on Scottsdale. Does Nat Jewish coordinate with your local doctor in..."

I have heard from my local pulmonologist that he is able to coordinate with a couple of the ID docs at NJH. However, my doctor is not easily reached as he travels all over the world speaking about NTM. But I do feel comfortable with my local doctor making whatever call he feels is necessary. What I am totally uncomfortable with are the local radiologists who read my CTs. They are so accustomed to seeing Valley Fever, that NTM/bronchiectasis seem to stump them. One of the reasons I first went to NJH was because the report on my first CT scared the pants off of me. According to the radiologist I was near death...obviously I was not. When my NJH doctor sees me, he first goes over my CT scan (done there) in detail before even reading what his own trusted radiologist has reported. On a couple of occasion, he's not agreed with the report. (I know I got a little side-tracked here...sorry!)