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← Return to Traveling with PMR
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I am on my second big trip since getting PMR in March 2024. It took doctors 2 months to diagnosis PMR. Started at 15mg prednisone and went up to 20mg. Felt pretty good tapering slowly to 12mg. First trip ok but sore after long flight to Alaska. Second trip started on December 5th with long flight to Thailand (about 20 hours). I felt better than expected at around 12mg dose. Doctor said to taper by 1mg every 3 week. At 10mg had alot of finger and hand pain and tingling.
Also neck and shoulder pain from carrying heavy day pack. I have found myself feeling better walking as much as possible and avoiding certain foods. Got case of travelers diarrhea and PMR symptoms increased. Went back to 10mg from 9mg. Feeling better but still have morning hand and wrist soreness.
Good luck to all.
Replies to "I am on my second big trip since getting PMR in March 2024. It took doctors..."
Hello @dbloom and @aisp3b I was talking to someone today who apparently has had a flare up of his PMR, (his wife is taking chemotherapy currently) He mentioned something about time zones -- he wishes he had tweaked the timing of taking his 10 mg Prednisone while in Oregon for 10 days ( vs. his home in RI) . SO I hope you'll manage very well on your trip to Switzerland ! Sounds wonderful !
The circadian nature of IL6 is mentioned in : PMRandIL6 website*.
"The effect of IL-6 on fatigue, mood,
and sleep was a result of its ability to stimulate the
hypothalamic-pituitary-adrenal (HPA) axis.43 In a study
of patients with PMR, IL-6 levels demonstrated a
circadian rhythm that peaked in the early hours of the
morning and correlated with the duration of morning
stiffness. "
* wow , which BTW seems to have much more info since I first stumbled upon it 1.5 yrs ago.
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Thank you for your comment. Do you increase your dose back to the previous dose every time you have a setback?