So sorry to hear about all your issues. I have DIPNECH also, dx’d after my RML lobectomy in 10/2023. A malignant lung tumor was discovered incidentally during a CT scan of my heart, then PET scan. Thankful I went to Memorial Sloan Kettering for my biopsy and subsequent surgery. Pathology showed typical “carcinoid”, and scans had shown other bumps and tumorlets (Nets) throughout lungs, hence DIPNECH diagnosis. I’m very thankful I have minimal symptoms, but like others have mentioned, I had a history of shortness of breath on exertion/inclines for a while, and had some bad chest infections that took months to clear up. Ultimately, I was tested for allergies, and put on allergy shots and given inhalers that I never really used. I don’t have asthma so they went unused. Now I am on Fasenra which is known to help eosinophilic asthma, but also allergies. I don’t notice much difference, except that since I’ve been on allergy shots, I have not been sick with a cold or any kind of major cough, which I find amazing, especially since this included the pandemic years. But now that I have the.DIPNECH diagnosis, I understand why my shortness of breath on exertion did not really improve with the lobectomy. Thankfully my symptoms are not severe at this point. I’m 75, fyi. I’m so sorry you have to deal with these symptoms and wish you well. It’s just nice to touch base with other people that have DIPNECH. No one I know has much experience with it, including my PCP and pulmonologist, I have to tell all my different doctors what it is, except of course my MSK doc. At this time, he says I need no treatment, but I do get scanned every six months. So far it has remained stable. Again, best wishes to you.