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MAC - To treat or not

MAC & Bronchiectasis | Last Active: 9 hours ago | Replies (28)

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@bellsina71

Do they have you on azithromycin, ethanbuterol, rifabutin? It's called The Big Three, some people can only take two of them. However, depending on what medications you're on. You should be on at least two of those if not all three to treat the Mac. For treatment of Mac you should be seeing a doctor who deals in infectious diseases/ID Doctor. MAC is not common. There could be many reasons why you may have gotten it. They have never figured out why I did. And I know many others that are in the scene predicament is me. However, you want to have someone treating you that knows how to treat this and is constantly getting updates on new treatments and therapies for it. Get a hold of someone in your network that's an infectious disease doctor and make an appointment. Most infectious disease doctors are going to treat MAC or if they have a clinic they will have doctors there that do treat it. I would not trust my treatment to my primary physician for it.

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Replies to "Do they have you on azithromycin, ethanbuterol, rifabutin? It's called The Big Three, some people can..."

I think I misled you somewhere. Sorry. I have not been diagnosed with MAC. When I brought up the possibility the doctor just brushes off the idea of me possibly having MAC because in his opinion most treatments for MAC fail and most people can't tolerate the treatment. I don't think he even realizes multiple ways to treat it, i.e. daily or 3 times a week.