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@mavans10

I totally agree so important to be your own health advocate. In 2005 when I was first diagnosed with Gastroparesis I went through multiple doctors in various specialties. I lost 90 lbs in four months, found specialists two hours away to go to, by then I had pancreatitis, my gallbladder wasn’t working and my digestion was shut down. I could hardly sip water, couldn’t eat gerber one baby food or anything. It took a very long time to recover but thankfully I pushed to get the referral to go elsewhere. Gastroparesis wasn’t as identified back then or treated as it is now. Interesting you mention sibo, I sent that to my GI doc this weekend due to the symptoms and chronic cdiff wondering if there is sibo or something else going on keeping bacteria there. I will keep searching and learning to work towards good health. I’m going to do some checking into the other items you mentioned. I also heard good things about DMSO and Colostrum just starting to research them for safety and benefits.

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Replies to "I totally agree so important to be your own health advocate. In 2005 when I was..."

@mavans10
I don't know how you plan any use of DMSO, but word of warning -- My Dad injected DMSO in his late 60's to early 70's because he read about the pain relief he could get in his legs and back. When he spoke you could see the blue vapor coming from his mouth, and the smell of that stuff was horrific, like raw oysters. His whole house smelled like that, and when he went out west every summer to pan for gold, I went over to wash down walls, clean rugs, but the smell was embedded in furniture, carpeting and the walls themselves. At 76 Dad had a minor stroke, and while in the hospital they ran him through a brain scan and found two non-malignant tumors near both sides of the brain stem. No one in our family before or since has had brain tumors, so please be careful. I used Colostrum myself for a couple of years, and while I had no side effects, I also saw no difference, except I didn't get the flu or the annual run of NORO Virus. However, that could also be because my son graduated and moved out to go to college, and they bring every bug there is home with them from school and share freely.
In 2004 I learned about gastroparesis from a nurse at Cleveland Clinic calling to set up appointments for me to go through a barage of tests prior to receiving an artificial aortic valve. When she called I was so weak from having my first gastroparesis attack the night before, with vomiting, diarrhea and hours of dry heaves which finally sent me to ER for IV's to stop the dry heaves. I told her I'd never been hit by anything like that in my life. 12 solid hours, 3 hours of dry heaves and trying to sleep on the floor in the bathroom. Nothing would stop it. The pain across my upper abdomen felt like someone was trying to saw me open. SHE told me her brother had these same attacks every time he ate and told me to look up gastroparesis and see if this is me. It was, and when I went in to see my old gastroenterologist, who I had been with since being 28 years of age, I asked him if I have gastroparesis and he told me, "Well, since you have slowed digestion, and that is what gastroparesis is, I would say yes." Same doctor that misdiagnosed a heart attack at 47 years of age as GERD. That heart attack went undiagnosed for over a month, and my heart built it's own collateral artery to do it's own bypass. Same doctor that put me on all those antacids for over 30 years, and this was back when doctors COULD spend time with their patients. Good luck in all that you try to do for yourself, it's a tough place out there when you have something few have heard about.