1. < Neuropathy

orthostatic intolerance

Posted by anema94559 @anema94559, Jan 26 2:41pm

Has there been any further research with respect to orthostatic intolerance as per Dr David Robertson of the Vanderbilt University since 1998 .. have had numerous tests and so far all tests come up negative with respect to blood rush ... mris, ct scans, etc.

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 26 3:03pm

Hello @anema94559, Welcome to Connect. I'm not sure of the further research as Dr. Robertson passed away Jan, 2024. The American Heart Association Journals Organization lists his obituary along with references to his published works here - https://www.ahajournals.org/doi/10.1161/HYPERTENSIONAHA.124.22755.

There are some members who have started discussions and commented on orthostatic intolerance that you might find helpful while you wait for others to respond - https://connect.mayoclinic.org/search/comments/?search=orthostatic%20intolerance.

Have you tried researching using Google Scholar (https://scholar.google.com/)?

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anema94559 | @anema94559 | Jan 26 4:25pm

Thank you for your very quick response. I will look into your emails and especially google scholar ... any information on this subject will be most helpful to me ... my neurologist has sent me and I have had numerous tests done with negative results ... so far, I seem to be the mystery patient ... some days are better than others and I can almost function normally, other days I have to stop and start .. it is the standing part that is the worst ... sitting has no lightheadedness at all .. once again, than you for listening ... a Toronto, Canada patient ...

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1 reply
stallen | @stallen | Jan 27 9:28pm
In reply to @anema94559 "Thank you for your very quick response. I will look into your emails and especially google..." + (show)
@anema94559

Thank you for your very quick response. I will look into your emails and especially google scholar ... any information on this subject will be most helpful to me ... my neurologist has sent me and I have had numerous tests done with negative results ... so far, I seem to be the mystery patient ... some days are better than others and I can almost function normally, other days I have to stop and start .. it is the standing part that is the worst ... sitting has no lightheadedness at all .. once again, than you for listening ... a Toronto, Canada patient ...

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Hello…has your neurologist tested you for small fiber neuropathy? Or autonomic neuropathy? Typically orthostatic hypotension is a result of nervous system not properly reacting to the rise to standing.

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1 reply
anema94559 | @anema94559 | Jan 28 8:48am
In reply to @stallen "Hello…has your neurologist tested you for small fiber neuropathy? Or autonomic neuropathy? Typically orthostatic hypotension is..." + (show)
@stallen

Hello…has your neurologist tested you for small fiber neuropathy? Or autonomic neuropathy? Typically orthostatic hypotension is a result of nervous system not properly reacting to the rise to standing.

Jump to this post

I have had so many tests done by neurologist since July but I have an appt. to see him tomorrow ... will bring up what you suggest ... further, it seems as if my bp is fluctuating wildly and that concerns me a lot ... am also going to phone my gp and do a follow up with her on the same day just after my neurologist ... thanks .. appreciate it ...

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