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Anyone with LC 4 years

Post-COVID Recovery & COVID-19 | Last Active: Feb 17 4:30pm | Replies (55)

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@tdiamond

I am very sorry for what you are going through. Everything you said resonated with me. I got Covid 3/20/2020 and was sick until July 2020. I had brain surgery and all kinds of medical problems I had never experienced before. When I got Covid, the doctors office didn’t want me to come into their office and I didn’t want to go to the ER bc of the # of deaths that were occurring. I rode it out at home alone & one night when I thought I wouldn’t see another day, I wrote down the passwords to all my important documents and who they should contact in the event I died overnight. I woke up the next day shocked that I was still alive. Everything hurt me from head to toes. I lost my smell and taste. My doctor wrote in my records “ presumed Covid” this prevented me from getting help. I had my own business and traveled all over the country prior to Covid. The part of my brain that was infected by covid is the executive functioning. I started writing backwards & couldn’t transpose numbers. I lost my organizational skills, fatigue set in, and I tried everything I could to get back to my business. When it finally occurred to me I couldn’t do my work anymore, I became depressed, scared, withdrawn, and I felt ashamed that I had become a figment of what I used to be. I’m a strong woman and always have been but I am struggling. Over the last almost 5 yrs, I e lost my house, business, and was forced to move out of California bc I had exhausted all my savings and assets. I was turned denied SSD bc they said simply “ you are not disabled”. You’re right about people making assumptions about us bc they don’t see a disability. My family and friends tell me I can do anything bc of the things I’ve achieved in my life. This has nothing to do with will power! We can’t physically do things we used to. They tell me there is nothing wrong with my brain bc I speak well. It seems like the world has forgotten us who were fortunate enough to survive, but have real problems. I wish everyone on this listserve a brighter day. I send you all love & light bc that’s what I have to offer 💔

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Replies to "I am very sorry for what you are going through. Everything you said resonated with me...."

Oh @tdiamond how your words I so related to. First I am so sorry you have endured so much and hopefully your travels have brought you to the meant to be healing and best life in your future place! My neurologist actually said I would be fine, his doctor colleague able to live several years before brain mass became excruciating requiring surgery, and I could outlive the covid created mass without surgery🙃
I do not wish this on my worst enemy yet think healthcare professionals we all rely on need a very quick dose of this to enable the understanding/ proactive mindset to fight within the systems for healing/life adaptive care for us. Quickest healing to all🌈